TPN setup. Bag on left contains nutrients, which are delivered to the veins by the battery-powered pump on the right.It has now been more than six weeks since I have eaten solid (i.e., real) food. No burgers, no chicken wings, no bagels, no salads . . . nothing except liquids, such as tea or broth. And lots of ice and water. Does ice qualify as a solid food?
The reason for this incredible un-diet is simple -- the cancer has blocked my digestive tract just below the stomach, so well that nothing can get through to be digested. Everything I consume in the usual way has to exit through a gastric tube. Noplace else to go, except back up the throat. Uck. Something has to go in, to maintain a certain moisture level, and ice water fits the bill very well.
Okay, so how about nutrition? Intravenous feeding, by a means called "tpn". I have a device installed in my left arm, a "pick line," which goes into a vein. The pick line is hooked up to a special IV pump which is attached to a bag of artificial food. The pump runs for 14 hours (!!!) -- overnight, since this is done at home -- to provide one day's worth of nutrition. So, to stay alive, I spend 98 hours per week hooked up to the pump contraption.
Fortunately, I can sleep through many of the 14 hours, and I can move around and do things -- like type this article -- during some of the remaining hours.
The 10 hours of freedom from the tpn pump have become precious time. Not that I can go far or do much -- one hour of a "normal" activity wears me out -- but at least I can do it without dragging the pump apparatus around.
I'm working on being able to go up and down the stairs more than once a day.
Short of a miracle, there's no cure coming this round -- but I'll be damned if I'll lie around waiting for the final move.
I met with the oncologist today and, assuming (hoping/wishing) that there are no further problems during this week, then I will resume chemotherapy on Monday. Different regime than before -- Avastin plus other stuff -- and with no real prospect of a "cure." A hold-back is probable; shrinking the size of tumors is probable; along with an outside chance of enough shrinkage to re-open digestion. A long shot, but seems worth taking.